A Global Pancreatitis Community • Learn • Connect • Feel Understood
DON'T SIT UP
A global pancreatitis community where you can learn, connect and feel understood — wherever you are in your journey.
Join our Community
A Pancreatitis community where you can learn, connect and feel understood
Living with pancreatitis can be difficult to explain to someone who hasn’t experienced it. Don’t Sit Up brings people affected by acute and chronic pancreatitis together across the world to share experiences, learn in plain English and find connection. Join Ray Snow and Erin Dalke for a growing library of over 100 short educational videos, community conversations, live online sessions and insights from invited professionals.
See What’s Included:
For people living with pancreatitis, survivors, families and carers. Our community shares education and lived experience; it does not provide individual medical advice.
We’re creating over 100 short educational videos, alongside community conversations and live online sessions.”
You don’t have to work it all out alone
A diagnosis can bring new words, new worries and a lot of questions. Even the people closest to you may struggle to understand what daily life feels like. We’re building a welcoming space where you can hear from others who understand, explore reliable information and take part at your own pace.
Whether you’ve recently had your first attack, live with chronic pancreatitis, or support someone you love, there is a place for you here.
What you’ll find inside the community
- People who understand: Connect with others affected by pancreatitis in a moderated space built for respectful conversation.
- Over 100 short educational videos: Explore clear, bite-sized explanations of pancreatitis, digestion, tests, recovery and everyday life.
- Live sessions with Ray and Erin: Join online conversations focused on a useful topic, with time to hear different experiences.
- Guest experts: Hear from invited clinicians, dietitian's, psychologists, researchers and other relevant professionals as the programme develops.
- Useful updates and resources: Discover new videos, upcoming events and carefully chosen places to learn more.
How it works:
1. Join in the way that works for you: Sign up to receive a welcome email and updates about videos, events and community access.
2. Explore and learn: Watch short videos and choose the topics that matter to you.
3. Connect when you’re ready: Attend a live session or take part in a community conversation. Listening quietly is welcome, too.
